Shortly after our second son's birth, he was diagnosed with Adrenoleukodystrophy (ALD), a rare, and potentially deadly, genetic condition that has profoundly affected our family. ALD has become a cause that we will champion for the rest of our lives, and it is so close to our hearts. ALD is caused by a mutation in the ABCD1 gene, leading to the body's accumulation of very long-chain fatty acids. These fatty acids can damage the myelin sheath protecting the nerves in the brain and spinal cord. This can result in a wide range of symptoms, including loss of motor function, blindness, deafness, and, in severe cases, it can be life-threatening.

The journey since our son's diagnosis has been filled with challenges, heartache, and resilience. The news of his condition was a profound shock and brought with it a cloud of uncertainty about his future. Through our journey, we have come to understand that ALD doesn't just affect our family; it impacts countless others who are also battling this rare and devastating condition. We've connected with families who share our pain, and we've seen the immense financial burden that comes with caring for a child with ALD. Medical expenses, specialized care, therapies, and necessary accommodations can be overwhelming. That's why we have made the commitment to raise money for ALD. We believe in the power of awareness and research to make a tangible difference in the lives of those affected by ALD.

Our goal is to support our care for our child while also assisting organizations and initiatives dedicated to research, providing support to affected families, and raising awareness about this rare condition. In the face of adversity, our family has grown stronger and more determined to make a positive impact. Together, we can work towards a future where ALD no longer threatens the lives of children and their families. We hope you will join us in this mission to raise awareness, support research, and make a difference in the lives of those battling ALD.